Press release
Save Baby Aiyla - A Mother's Last Hope to Keep Her
I am reaching out with an urgent and heartbreaking story about a London baby who is fighting for her life - a story that desperately needs media attention.Baby Aiyla, only nine months old, has been diagnosed with Spinal Muscular Atrophy (SMA Type 1), one of the most severe and fatal genetic conditions in infants. Doctors have told her parents that without immediate treatment, she will not survive.
There is a life-saving therapy available - Zolgensma, a one-time gene treatment that can stop the disease - but it costs £600,000,
far beyond what the family can afford despite selling everything they have.
As a close family friend and the campaign organiser, I have stepped in to help, but we are running out of time.
The treatment is most effective before Aiyla turns one, making this appeal extremely urgent.
Campaign link (full story + fundraiser):
DONATE NOW
https://www.crowdfunder.co.uk/p/save-baby-aiyla-a-mothers-last-hope-to-keep-her
Your coverage could be the difference between life and loss for this child.
We would be deeply grateful if you could help raise awareness/share of this urgent appeal.
Thank you for taking the time to review this urgent case.
I am available immediately for any further information.
Kind regards,
Sharif
Family Friend & Campaign Coordinator
Media Contact
Sharif
71-75 SHELTON STREET COVENT GARDEN
LONDON
UNITED KINGDOM WC2H 9JQ
Save Baby Aiyla is an urgent humanitarian campaign created to support nine-month-old Aiyla from London, who has been diagnosed with Spinal Muscular Atrophy (SMA Type 1) - one of the most severe genetic disorders affecting infants. Without immediate treatment, SMA Type 1 is fatal.
Aiyla's only chance at survival is Zolgensma, a one-time gene therapy that can stop the progression of the disease. The treatment costs £600,000, far beyond what her family can afford despite exhausting all personal resources.
This campaign was launched by close family friend Sharif to raise the necessary funds before Aiyla turns one year old - the critical window during which the treatment is most effective. The mission is simple but urgent: to give Baby Aiyla a chance at life.
The full story, medical details, and donation portal can be found on the campaign page:
https://www.crowdfunder.co.uk/p/save-baby-aiyla-a-mothers-last-hope-to-keep-her
For media, collaboration, or verification, please contact:
Sharif - Family Friend & Campaign Coordinator
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