Two Organizations, One Event: Fighting Leukodystrophies, Eating Disorders
AMARILLO, TEXAS – The Stennis Foundation and TeamBraeden of Amarillo, Texas, are coming together to fight Leukodystrophies and Eating Disorders. They are sponsoring the L.E.D. (Leukodystrophies and Eating Disorders) Walk on Saturday, September 22, 2007, at Sam Houston Park, located at Line Avenue and Western Street. Sign-in and late registration begins at 9:00 a.m.; the walk begins at 10:00. Proceeds from this event will be used to fund Leukodystrophies research, as well as inpatient treatment for Eating Disorders.
The Leukodystrophies are a group of rare brain-degenerative diseases that strip away myelin, the insulated covering of nerves in the brain. Prognosis for these diseases depends on the specific type of Leukodystrophy. Treatment is symptomatic and supportive, and can include medications, various therapies, and possible bone marrow transplantation. Government funding for research is limited, so it is important to provide funding for research to find a cure for these diseases.
Eating Disorders – the main types being Anorexia Nervosa and Bulimia Nervosa – are real, treatable medical illnesses in which maladaptive patterns of eating take on a life of their own. They frequently develop during adolescence or early adulthood, but have been known to develop during childhood. Patients with eating disorders can experience physical health complications, including heart conditions and kidney failure, which can lead to death; therefore, to recognize eating disorders as serious, real medical conditions, and insuring that patients can get the help they need, is of the utmost importance.
Two organizations. Two causes. One event.
For additional information regarding the Leukodystrophies, log on to www.stennisfoundation.org. For additional information regarding Eating Disorders, or to download a brochure for the L.E.D. Walk, log on to www.teambraeden.org, or call (806) 467-2747.
# # #
The Stennis Foundation
PO Box 30065
Amarillo, TX 79120
Founder and President
About The Stennis Foundation: The Stennis Foundation is a nonprofit committed to raising awareness of the Leukodystrophies, and to raising funds for Leukodystrophies research. The Stennis Foundation became a 501(c)(3) nonprofit organization in October of 2002, after Dr. Sam Stennis, a former Amarillo optometrist, was diagnosed with adult-onset Metachromatic Leukodystrophy (MLD) at age 47. When a friend of the Stennis family realized that there was no treatment or cure for MLD, she set out to find one, and the work of the Foundation began. The Stennis Foundation currently supports research at Duke University in Raleigh-Durham, NC; Kennedy Krieger Institute in Baltimore, MD; and San Raffaele Institute in Milan, Italy. In these research projects, The Stennis Foundation has partnered with other organizations such as the Tomaino Children’s Fund, the Trimper Children’s Foundation, The Evanosky Foundation, and The Myelin Project, which has relocated its offices from the Washington, DC, area to Amarillo, Texas. The Stennis Foundation is leading the way in administrating funds through The Myelin Project, and forming an alliance with them. It is the hope of The Stennis Foundation that other organizations will allow The Myelin Project to serve as a clearinghouse for them, in administrating the funds that are needed and raised for Leukodystrophies research.
About TeamBraeden: TeamBraeden is an Eating Disorders Assistance Program. The funds raised by TeamBraeden go toward helping educate the public regarding eating disorders: what they really are -- and what they are not. TeamBraeden assists with financial help, by way of application process, to cover costs associated with treatment, that insurance does not cover, such as counseling, and inpatient therapy.
“Eating disorders are not due to a failure of will or behavior; rather, they are real, treatable medical illnesses in which certain maladaptive patterns of eating take on a life of their own. The main types of eating disorders are anorexia nervosa and bulimia nervosa. A third type, binge-eating disorder, has been suggested but has not yet been approved as a formal psychiatric diagnosis. Eating disorders frequently co-occur with other psychiatric disorders such as depression, substance abuse, and anxiety disorders. In addition, people who suffer from eating disorders can experience a wide range of physical health complications, including serious heart conditions and kidney failure, which may lead to death. Recognition of eating disorders as real and treatable diseases, therefore, is critically important” (NIH, 2007).
When insurance refused to cover areas of her daughter's treatment, a mother approached her daughter's nurse practitioner and therapist about starting an organization that would help, and TeamBraeden was born. TeamBraeden was officially incorporated on December 27, 2006; and is recognized by the Internal Revenue Service as a 501(c)(3) nonprofit organization.
This release was published on openPR.
Permanent link to this press release:
Please set a link in the press area of your homepage to this press release on openPR. openPR disclaims liability for any content contained in this release.
You can edit or delete your press release Two Organizations, One Event: Fighting Leukodystrophies, Eating Disorders here
News-ID: 26123 • Views: 3219
More Releases for Foundation
PRINCE2® Foundation Certification Training Pune | PRINCE2® Foundation Certific …
PRINCE2® (Projects IN Controlled Environments) certification is recognized worldwide for its practice-driven approach to project management. PRINCE2® is a Project Management Methodology. The methodology includes the management, control, and organization of a project. Vinsys is conducting PRINCE2® Foundation Certification Training in Pune on 18-19-25 And 26 August 2018. The purpose of the foundation level is to confirm you have enough information and understanding of the PRINCE2® method to be able to
Hyper IgM Foundation Research Grants:
FOR IMMEDIATE RELEASE: February 05, 2018. The Hyper IgM Foundation is proud to announce the availability of seed grant funding for researchers interested in the advancement of a cure for Hyper IgM Syndrome and primary immunodeficiency disorders. The intent of these grants is to accelerate scientific work focused on improving the treatment, quality of life, and long-term outlook for patients with Hyper IgM. Special consideration will be given to well-defined projects
vWIN foundation goes online
Venous World Inter-university Network (vWIN) foundation was created by Sergio Gianesini, Oscar Bottini and Yung Wei Chi, three vein specialists from the University of Ferrara (Italy), Universidad de Buenos Aires (Argentina) and the University of California Davis (USA), respectively. vWIN as three main aims: Scientific research & meetings Humanitarian missions Social and Sport activities promoting public venous & health awareness The first rationale of the foundation is the improvement of the scientific knowledge about the
Hyper IgM Foundation Research Grants:
FOR IMMEDIATE RELEASE: January 11 , 2017. The Hyper IgM Foundation is proud to announce the availability of seed grant funding for researchers interested in the advancement of a cure for Hyper IgM Syndrome and primary immunodeficiency disorders. The intent of these grants is to accelerate scientific work focused on improving the treatment, quality of life, and long-term outlook for patients with Hyper IgM. Special consideration will be given to well-defined
openAPC Foundation e.V. has become Associate Member at Eclipse Foundation
April, 2011 (Dresden, Germany) Since March 2011, the openAPC Foundation e.V. has become “Associate Member” at the Eclipse Foundation. The openAPC Foundation e.V. in Dresden, Germany is using the Eclipse Public License (EPL) as open source license for free available Advanced Process Control (APC) software solutions. APC software is used to reveal process deviations and to increase process stability, i.e. during production and manufacturing processes. “Right from the start of the
Alpha Foundation Specialists of Florida Expands Foundation Repair Business
Alpha Foundation Specialists of Florida Expands Foundation Repair Business Tallahassee, FL - Local foundation repair contractor company, Alpha Foundation Specialists of Florida, teams up with the international Foundation Supportworks network. Alpha Foundation Specialists, a locally owned and operated foundation repair contractor serving the northern Florida and south Georgia area, is growing. They’ve been selected to take up the Foundation Supportworks (FSI) banner in their area, and have joined this contractor network that