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Many Faces of Moebius Syndrome Launches Global Awareness Campaign for 16th Moebius Syndrome Awareness Day

10-06-2025 05:12 PM CET | Health & Medicine

Press release from: Many Faces of Moebius Syndrome

/ PR Agency: Tim Smith, Founder & President, Many Faces of Moebius Syndrome
Many Faces of Moebius Syndrome (MFOMS) logo - founders of Moebius Syndrome Awareness Day

Many Faces of Moebius Syndrome (MFOMS) logo - founders of Moebius Syndrome Awareness Day

Moebius Syndrome is a rare neurological condition that affects fewer than one in 50,000 births worldwide. It causes facial paralysis and limits eye movement, making it difficult for those living with the condition to smile or show expression. Yet behind every still face is a story full of strength, humor, and determination.

The Many Faces of Moebius Syndrome (MFOMS) organization-an all-volunteer nonprofit founded in 2009 by Tim Smith-has announced a worldwide campaign in honor of the 16th annual Moebius Syndrome Awareness Day (MSAD) on January 24, 2026. The campaign will celebrate fifteen years since the inaugural event, first launched by MFOMS in 2011, and encourage participation through two major initiatives:
• Proclamation Drive 2026: Empowering families and advocates to request official proclamations recognizing January 24 as Moebius Syndrome Awareness Day in their cities and states.
• Storytelling Initiative: Inviting individuals to share their Moebius stories through local media, schools, and online platforms to increase understanding and representation.

"Each January, our community comes together to turn awareness into action," said Tim Smith, founder and president of MFOMS. "This milestone year is about amplifying every voice and showing that even a face that cannot smile can still express hope, courage, and love."

To learn more about Moebius Syndrome, download the Proclamation Toolkit, and get involved in Moebius Syndrome Awareness Day 2026, visit www.mfoms.org/moebiussyndromeawarenessday.

About Many Faces of Moebius Syndrome (MFOMS):
Founded in 2009, MFOMS is an all-volunteer nonprofit organization dedicated to connecting families, raising awareness, and giving a voice to people living with Moebius Syndrome worldwide.

Contact:
Tim Smith, Founder & President
Many Faces of Moebius Syndrome (MFOMS)
Remington, Virginia, USA
📧 tim@mfoms.org
🌐 www.mfoms.org
🌐 www.mfoms.org/moebiussyndromeawarenessday

Many Faces of Moebius Syndrome
Attn.: Timothy Smith
11744 Remington Road
Remington, Virginia 22734
540 219 1248
tim@mfoms.org

Many Faces of Moebius Syndrome (MFOMS) is an all-volunteer global organization founded in 2009 by Tim Smith. The organization connects individuals and families affected by Moebius Syndrome through community outreach, education, and awareness initiatives. MFOMS created Moebius Syndrome Awareness Day in 2011 to raise worldwide understanding of this rare neurological condition and continues to lead storytelling and advocacy efforts that give every person with Moebius Syndrome a voice and a sense of belonging.

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