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Hyper IgM Foundation founders launch $15,000 fundraising campaign in honor of their son's 3rd transplantversary!

07-19-2019 08:51 AM CET | Health & Medicine

Press release from: Hyper IgM Foundation, Inc.

Hyper IgM Foundation founders, Akiva and Amanda Zablocki, launch $15,000 fundraising campaign in honor of their son's 3rd Transplantversary.

Idan Zablocki will celebrate the 3rd birthday of his new immune system on July 19th, one day before his actual 7th birthday. While Idan no longer needs to worry about germs and infections and can live a normal life, the Zablockis continue to dedicate their time and resources to finding a cure for all other children with Hyper IgM Syndrome.

The Zablockis launched their campaign both online and on social media, pledging to match the first $1,000 raised on Facebook. They wrote: "This past year has been quite remarkable, with Idan finally meeting his donor, Alex, who saved his life! It has been truly amazing to see these two get to know each other, and the way Idan’s face lights up every time we mention that we will be seeing Alex. While Idan has become an amazing big brother this year to his sister, Maya, he has also gained a 'blood' brother in Alex. Alex’s blood (and healthy immune system) flows through Idan’s veins, keeping Idan strong and safe as he ventures through finishing 1st grade and going to day camp this summer. But while Idan had Alex to donate his life-saving stem cells, so many other patients with Hyper IgM Syndrome do not have this option. So many other children with Hyper IgM have been less fortunate, whether with respect to transplant outcomes, finding a donor match, or simply living with Hyper IgM."

The Hyper IgM Foundation, which the Zablockis founded in 2015, is working tirelessly to support these families and to help find a cure for all children and adults living with Hyper IgM Syndrome. In the past two years, campaigns in celebration of Idan's strength and resilience have raised over $40,000, which has gone a very long way in supporting the Foundation and the research grants we provide. Importantly, the Foundation is helping to fund cutting-edge gene editing research that will hopefully provide a safe and long-lasting cure for Hyper IgM Syndrome.

Today, we ask you to help us support the Zablockis' goal of finding a real cure for Hyper IgM by donating in honor of Idan’s 3rd Transplantversary. Their goal is to raise $15,000 this summer, which will allow the Foundation to increase its grants to research focused on gene therapy and, ultimately, to accelerate a cure.

Donate today and help us cure Hyper IgM Syndrome:
https://hyperigm.networkforgood.com/projects/77258-support-idan-s-journey-to-a-cure

Hyper IgM Foundation
215 W101st Street. Suite 7B
New York, NY 10025
United State of America
www.hyperigm.org

Hyper IgM Foundation, a non-profit organization, was founded in 2015 by dedicated parents, healthcare professionals and friends. Our mission is to improve the treatment, quality of life and the long term outlook for children and adults living with Hyper IgM through research, support, education, and advocacy to families and patients.

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More Releases from Hyper IgM Foundation, Inc.

Hyper IgM Foundation Announces $30,000 In Research Grants:
FOR IMMEDIATE RELEASE: January 21, 2020. The Hyper IgM Foundation is proud to announce the availability of seed grant funding for researchers interested in the advancement of a cure for Hyper IgM Syndrome. The intent of these grants is to accelerate scientific work focused on improving the treatment, quality of life, and long-term outlook for patients with Hyper IgM. Special consideration will be given to well-defined projects focused on gene
Hyper IgM Foundation Announces $25,000 In Research Grants:
FOR IMMEDIATE RELEASE: February 19, 2019. The Hyper IgM Foundation is proud to announce the availability of seed grant funding for researchers interested in the advancement of a cure for Hyper IgM Syndrome and primary immunodeficiency disorders. The intent of these grants is to accelerate scientific work focused on improving the treatment, quality of life, and long-term outlook for patients with Hyper IgM. Special consideration will be given to well-defined projects
The Hyper IgM Foundation Presents $15,000 Grant to Dr. Antonio Condino-Neto at U …
NEW YORK, New York—The Hyper IgM Foundation is delighted to announce it has awarded $15,000 to Dr. Antonio Condino-Neto at University of São Paulo, Brazil, to support research into Novel Immunopathological Mechanisms of X-Linked Hyper IgM Syndrome. These funds will support the continued work in search of additional treatments for X-Linked Hyper IgM Syndrome (X-HIGM). Currently, the only known cure for X-HIGM is a stem cell transplant. There are no curative
Hyper IgM Foundation Research Grants:
FOR IMMEDIATE RELEASE: February 05, 2018. The Hyper IgM Foundation is proud to announce the availability of seed grant funding for researchers interested in the advancement of a cure for Hyper IgM Syndrome and primary immunodeficiency disorders. The intent of these grants is to accelerate scientific work focused on improving the treatment, quality of life, and long-term outlook for patients with Hyper IgM. Special consideration will be given to well-defined projects

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