Press release
Hyper IgM Foundation founders launch $15,000 fundraising campaign in honor of their son's 3rd transplantversary!
Hyper IgM Foundation founders, Akiva and Amanda Zablocki, launch $15,000 fundraising campaign in honor of their son's 3rd Transplantversary.Idan Zablocki will celebrate the 3rd birthday of his new immune system on July 19th, one day before his actual 7th birthday. While Idan no longer needs to worry about germs and infections and can live a normal life, the Zablockis continue to dedicate their time and resources to finding a cure for all other children with Hyper IgM Syndrome.
The Zablockis launched their campaign both online and on social media, pledging to match the first $1,000 raised on Facebook. They wrote: "This past year has been quite remarkable, with Idan finally meeting his donor, Alex, who saved his life! It has been truly amazing to see these two get to know each other, and the way Idan’s face lights up every time we mention that we will be seeing Alex. While Idan has become an amazing big brother this year to his sister, Maya, he has also gained a 'blood' brother in Alex. Alex’s blood (and healthy immune system) flows through Idan’s veins, keeping Idan strong and safe as he ventures through finishing 1st grade and going to day camp this summer. But while Idan had Alex to donate his life-saving stem cells, so many other patients with Hyper IgM Syndrome do not have this option. So many other children with Hyper IgM have been less fortunate, whether with respect to transplant outcomes, finding a donor match, or simply living with Hyper IgM."
The Hyper IgM Foundation, which the Zablockis founded in 2015, is working tirelessly to support these families and to help find a cure for all children and adults living with Hyper IgM Syndrome. In the past two years, campaigns in celebration of Idan's strength and resilience have raised over $40,000, which has gone a very long way in supporting the Foundation and the research grants we provide. Importantly, the Foundation is helping to fund cutting-edge gene editing research that will hopefully provide a safe and long-lasting cure for Hyper IgM Syndrome.
Today, we ask you to help us support the Zablockis' goal of finding a real cure for Hyper IgM by donating in honor of Idan’s 3rd Transplantversary. Their goal is to raise $15,000 this summer, which will allow the Foundation to increase its grants to research focused on gene therapy and, ultimately, to accelerate a cure.
Donate today and help us cure Hyper IgM Syndrome:
https://hyperigm.networkforgood.com/projects/77258-support-idan-s-journey-to-a-cure
Hyper IgM Foundation
215 W101st Street. Suite 7B
New York, NY 10025
United State of America
www.hyperigm.org
Hyper IgM Foundation, a non-profit organization, was founded in 2015 by dedicated parents, healthcare professionals and friends. Our mission is to improve the treatment, quality of life and the long term outlook for children and adults living with Hyper IgM through research, support, education, and advocacy to families and patients.
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